I just copied this from Chris and Emily's post on their blog....
"We need a nursery!"
Chris and Emily just met with the geneticist, genetic counselor and her OB. They just came out to the waiting room and shared the following with us all, "We need a nursery!" Praise God, Praise God, Praise God!
All of the x-rays and tests still show the same "fatal" rib condition, but the doctors are amazed that he is surviving on his own. The geneticist told them to make an appointment with him in MAY! The doctors asked for permission to send a picture of Cohen to the author of the text book on skeletal dysplasias who lives in Germany - the doctors are baffled. We know it is God! We still need to pray for his strength to breathe and remember that he's still in the NICU. They are going to run an echo on his heart before they transfer him. We don't know yet many details about schedule or what will come next, but for now we are thrilled and crying tears of joy.
Emily is doing much better since the change of meds. She has been able to get out of bed and is sitting much more comfortably in the wheel chair. She and Chris are now in the NICU with Cohen.
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